Pittsburgh Claude D. Pepper Older Americans Independence Center

Registries


Community Registry

  • Over 3000 community-dwelling persons from the Pittsburgh region age 60 or older.
  • Registry participants consent to be contacted for participation in Pepper-approved research studies.
  • Participants are followed yearly by telephone calls to update contact their information, mobility and balance status, and basic health information.
  • Registry has helped over 60 studies with recruitment.
  • Only 10% of the sample has been lost to follow-up, including deaths, relocation, and refusal.
  • Follow-up interview waves reach about 85% of the cohort.

We are looking for people to help us with our research. Please consider joining our registry. Email Dory Adams for more information or to enroll.

Researchers wanting to use the registry need to apply. There are two phases of access:

  1. Screening of unidentified group data for potential sample size. Investigators can search the database using criteria related to mobility status, demographics, or other indicators to determine potential sample size for a study.
  2. Access to identifiable data for actual recruitment. Studies require formal research approval, including IRB and protocol review by the registry committee. Investigators then have access to individual subject data in an automated web-based application. Investigators receive a password, specify study inclusion/exclusion criteria on a secure webpage, and download a current database of potentially eligible respondents.

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Platinum Senior-Living Registry

What does the Platinum Senior-Living Research Registry do?

  • We compile lists of senior-living communities and participants ages 55+ who are willing to participate in research
  • We can provide sites for researchers to conduct long-term care research in the greater Pittsburgh area
  • We can provide lists of participants who may be eligible and are willing to participate in research
  • We can provide queried de-identified data sets to assist with grant proposals and IRB submissions

FAQs for Interested Investigators.

Researchers who are interested in using the Platinum Senior-Living Registry should contact Maddie Rigatti.

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