- Over 3000 community-dwelling persons from the Pittsburgh region age 60 or older.
- Registry participants consent to be contacted for participation in Pepper-approved research studies.
- Participants are followed yearly by telephone calls to update contact their information, mobility and balance status, and basic health information.
- Registry has helped over 60 studies with recruitment.
- Only 10% of the sample has been lost to follow-up, including deaths, relocation, and refusal.
- Follow-up interview waves reach about 85% of the cohort.
We are looking for people to help us with our research. Please consider joining our registry. Email Dory Adams for more information or to enroll.
Researchers wanting to use the registry need to apply. There are two phases of access:
- Screening of unidentified group data for potential sample size. Investigators can search the database using criteria related to mobility status, demographics, or other indicators to determine potential sample size for a study.
- Access to identifiable data for actual recruitment. Studies require formal research approval, including IRB and protocol review by the registry committee. Investigators then have access to individual subject data in an automated web-based application. Investigators receive a password, specify study inclusion/exclusion criteria on a secure webpage, and download a current database of potentially eligible respondents.
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Long-Term Care (LTC) Registry
- Research participants currently or previously residing in LTC facilities
- Selected de-identified data describing the LTC Registry participants and pertinent clinical outcomes
- LTC facility staff that consent residents are trained in human subjects protections
- The consent authorizes
- permission to contact potential participants about research studies
- the ability to collect data about the resident’s demographics, health related conditions, and medications
Researchers who are interested in using the LTC Registry should contact Maddie Rigatti.
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